Family Resources

As you raise kids with disabilities, you may find these resources and organizations to be helpful.

Family Guide and Support

      • Able Village
        A Global Village for Health Issues

        • Location: P.O. Box 9690, Treasure Island, FL 33740-1410
        • Email:info@ablevillage
        • Website: www.ablevillage.com
        • Able Village is a free, all-inclusive, user-generated website created as a plateform for the special needs community, service providers, and individuals affected by those with health concerns.
          Able Village is a place…
          – Where those with health care needs or within the special needs community can connect with clinical service providers as well as each other.
          – To access global resources from the convenience of your home or office.
          – To share ideas & stories, upload articles, videos, and the latest research, write blogs, create profiles, and much more.
          – Where clinical providers can freely promote their services to those who need them – all within our searchable directory.
      • AUT 2B Home Resources
        Family resources on Autism

        • Website:http://www.weirdkids.com/autism/aut2bhome.htm
        • This website contains many resources of particular interest to autism, but most apply to other special needs as well. Many of the mailing lists are applicable to all homeschoolers.
      • Autism Society of America
        Information and advocacy

        • Location: 7910 Woodmont Avenue, Suite 300, Bethesda, MD 20814
        • Phone: 800-328-8476
        • Website: http://www.autism-society.org/
        • ASA promotes lifelong access and opportunity for all individuals within the autism spectrum, and their families, to be fully participating, included members of the community. Education, advocacy, public awareness efforts, and the promotion of research are all goals of ASA. The society is the leading source of information and referral on autism to parents, professionals, and members of the general public. They publish a bi-monthly newsletter, Advocate, and a parent packet, Getting Started.
      • Autism Society of Greater Orlando
        Founded by a group of volunteer parents to assist families affected by autism.

        • Location: 4743 Hearthside Drive, Orlando, FL 32837
        • Phone: 407-855-0235
        • Email: contact@asgo.org
        • Website: http://www.asgo.org/
        • The mission of the Autism Society of Greater Orlando is that all individuals within the autism spectrum will be provided a lifetime network of opportunities to become fully accepted, included, and actively participating members of our community, through family support, education, and advocacy, and public awareness.
      • Beach Center on Disability
        The University of Kansas

        • Location: Haworth Hall, Room 3136 1200 Sunnyside Avenue Lawrence, KS 66045-7534
        • Phone: 785-864-7600
        • Website: http://www.beachcenter.org/
        • This is a clearinghouse with materials written for families of children with various disabilities.
      • Brave Kids
        Our mission is to help children with chronic, life-threatening illnesses or disabilities.

        • Location: 151 Sawgrass Corners Dr, Ponte Vedra Beach, FL. 32082
        • Phone: 904-280-1895
        • Email: kristen@bravekids.org
        • Website: http://www.bravekids.org/
        • Brave Kids Provides…
        • 1. Bravekids.org – the online community for children with special needs and their caretakers.
        • 2. Message Boards to give emotional support to children with special needs and parents by connecting them to others in similar situations around the world.
        • 3. Directory of Healthcare Resources based on zip codes for children with special needs. This enables caretakers to easily locate healthcare resources & support for ill children in their community.
        • 4. The Most Recent and Accurate Medical Information for family members, as well as providing illness-related information to the children in a fun, interactive way so they can understand what’s happening to them.
        • 5. Brave Kids Resource Centers to pediatric wards of hospitals, which enables parents to locate medical information and local resources while they are in the hospital with their child.
        • 6. Community Outreach – Providing education and training on locating resources in the community for children with special needs.
      • Bright Feats
        Free Resource Guide for the Special Needs Community

        • Location: PO Box 161602, Altamonte Springs, FL 32716-1602
        • Phone: 407-461-4847
        • Email: Allie@Brightfeats.com
        • Website: http://www.BrightFeats.com
        • Bright Feats directory is a list of medical providers and commercial businesses that is helpful to families with children of ranging abilities. We bring to this directory our own expertise as a nurse and a teacher who are both parents of special needs children. Bright Feats is a full color publication distributed quarterly.
      • Carol’s Web Corner
        Strategies from homeschooling Mom of an ADHD child.

      • Center for Evidence-Based Practice: Young Children with Challenging Behavior
        Information, brochure and tips

        • Location: University of South Florida, 13301 Bruce B. Downs Blvd., Tampa, FL 33612-3807
        • Phone: 813-974-6100
        • Website: http://challengingbehavior.org/
        • The Center for Evidence-Based Practice: Young Children with Challenging Behavior (CEBP) has a brochure titled “Positive Solutions for Families” available online, along with many other resources. This brochure provides parents with eight practical tips they can use when their young children exhibit challenging behavior. Each tip includes a brief explanation and an example to show parents how they might use the specific approach with their own family in everyday life. Download this FREE brochure, by clicking here: http://challengingbehavior.org/do/resources/documents/positive_solutions_for_families.pdf.
      • CPKids, (Chat Pals) for Kids

        • CPKids, (Chat Pals) for Kids is the “Just for Kids” part of KidPower. Here you will find an email list just for children with special needs so they can talk back and forth a little easier. You will also find links to all those fun kid’s places, a chat room, and a message board.
      • Connecting One Piece at a Time
        Offering hope for children and families

      • Dave Dravecky’s Outreach of Hope
        Hope in the Midst of Adversity

        • Website: http://www.davedraveckystory.com
        • The mission of Dave Dravecky’s Outreach of Hope is to serve suffering people, especially those with cancer and amputation, by offering resources for encouragement, comfort and hope through a personal relationship with Jesus Christ.
      • Family Network on Disabilities
        A national network of individuals of all ages who may be at-risk, have disabilities, or have special needs and their families, professionals, and concerned citizens.

        • Website: http://www.fndfl.org
        • Family Network on Disabilities of Florida, Inc. is a statewide alliance of individuals with disabilities, special needs, or at-risk and their families. Our mission is to provide family-driven support, training, information, and advocacy.
      • Family Voices
        Family network

        • Location: 2340 Alamo SE Suite 102 Albuquerque, NM 87106
        • Phone: 888-835-5669
        • Website: http://www.familyvoices.org
        • Family Voices, a national grassroots network of families and friends, advocates for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals.
      • Florida Developmental Disabilities Council, Inc
        Advocacy and promotion for meaningful participation in all aspects of life for Floridians with developmental disabilities

        • Website: http://www.fddc.org/
        • The purpose of the Florida Developmental Disabilities Council is to engage in advocacy, capacity building, and systemic change activities that contribute to a coordinated, consumer and family centered, consumer and family directed, comprehensive system of community services and individualized supports that enable individuals with developmental disabilities to exercise self-determination, be independent, be productive, and be integrated and included in all facets of community life.
      • Healthy Start Coalition of Orange County
        Family Resources

        • Location: 600 Courtland Street Suite 565 Orlando, Fl 32804
        • Phone: (407) 741-5240
        • Website: http://www.healthystartorange.org/?p=h
        • The Coalition is a non-profit organization, working as a public-private partnership, to better serve resident Orange County pregnant women, infants, and their families.
      • Gluten Free / Casein Free Support Group

        • Location: PO Box 1692 Palm Harbor, FL 34683
        • Website: http://www.gfcfdiet.com/
        • Gluten-free/ Casien-free diet (GFCF) The Official GFCF Diet Support Group, nutritional support, books, DVD’s, forums, dietary intervention treatment for autistic spectrum disorders
      • National Multiple Sclerosis Society
        Family Advocacy and Information

        • Location: 733 Third Avenue, New York, NY
        • Phone: 800-FIGHT-MS
        • Website: http://www.faceofms.org/
        • There is no one face to multiple sclerosis (MS). Every person who has MS and every person it touches experiences MS in a different way. Visit the National MS Society website (FaceofMS.org) to connect with an online community featuring the stories of people with MS and those in the fight against it — families, friends, researchers, healthcare professionals, volunteers, anyone impacted by the disease.
      • National Father’s Network

        • Website: http://www.fathersnetwork.org/554.html?
        • Celebrates and supports fathers and families raising children with special health care needs and developmental disabilities. Provides news, stories, photos, resources, providers and events.
      • OASIS
        Online Asperger Syndrome Information and Support

        • Website: http://www.aspergersyndrome.org/
        • OASIS stands for Online Asperger Syndrome Information and Support.
        • As parents of children who are diagnosed with AS, we understand how essential is it that families of children diagnosed with Asperger Syndrome and related disorders, educators who teach children with AS, professionals working with individuals diagnosed with AS, and individuals with AS who are seeking support, have access to information. Although recently reminded that there is no oasis or paradise for those with Asperger Syndrome, we sincerely hope that they, along with parents and professionals, will find a bit of shade and support via the information presented and links available at this site.
      • Our-Kids
        Website for Family Support

        • Website: http://www.our-kids.org
        • A “Family” of parents, caregivers and others who are working with children with physical and/or mental disabilities and delays. The list consists of over 800 people representing children of varying diagnosis; everything from indefinite developmental delays and sensory integration problems, to cerebral palsy, to rare genetic disorders.
      • Spina Bifida Association of Florida Space Coast
        Family resources

        • Location: 3744 Grand Meadows Blvd., Melbourne, FL 32934
        • Phone: 321-757-6977
        • Website: http://ese.brevard.k12.fl.us/icb/SpinaBifida.html
        • Phone number is for Leslie Krysinel, President. This is a grass-roots, parent/child support group that informs, advocates, and promotes social events for individuals, and their families meeting the daily challenges of the birth defect Spina Bifida.
      • The Family Village
        Waisman Center University of Wisconsin-Madison

        • Location: 1500 Highland Avenue Madison, WI 53705-2280
        • Email: familyvillage@waisman.wisc.edu
        • Website: http://www.familyvillage.wisc.edu/
        • The Family Village is a web site for children and adults with cognitive and other disabilities, their families, and their friends and allies. Family Village brings together thousands of online resources in a organized, easy-to-use directory. The centerpiece of Family Village is the library, where visitors can find information on over 300 diagnosis. Visitors can also learn about assistive technology, legal rights and legislation, special education, leisure activities and much more.

Family Services

      • KEL Attorneys
        Legal representation in every area of the law as it relates to individuals

        • Location: 111 N Magnolia Ave, Suite 1600, Orlando, FL 32801
        • Phone: 407-513-1900
        • Fax: 407-513-1961
        • Website: http://kelattorneys.com
        • KEL Attorneys in downtown Orlando has recently opened up a new area of practice for Special needs law.
      • Law Office of Hoyt & Bryan, LLC
        Information regarding guardianship

        • Location: 251 Plaza Drive, Suite B Oviedo, FL 32765
        • Phone: 407-977-8080
        • Website: http://www.hoytbryan.com
        • Our office can help the special needs community by helping the families set-up special needs planning.
          THE LAW OFFICES OF HOYT & BRYAN, LLC is committed to being truthful with each client and providing the individual service they deserve through:
          – Educational forums for individuals and their families, as well as their CPAs and financial advisors.
          – Communication with our clients and their professional advisors regarding changes in the law and our experience through the use of newsletters, consultations, group counseling and fellowship meetings, electronic and computer media.
          – Prompt courteous service to our clients.
      • Mascia Law Firm
        Debt Consolidation for families with Special Needs Kids

        • Location: 605 East Robinson Street, Suite 300, Orlando, FL 32801
        • Phone: 321-283-5955
        • Fax: 321-256-5910
        • Email: Info@MasciaLawFirm.com
        • Website: http://www.macialawfirm.com
      • Stand/Statewide Advocacy of Network on Disabilities
        Information for the families of children with disabilities about their rights.

        • Website: http://www.standadvocates.org/
        • STAND’s purpose it to inform the families of children with disabilities of their rights. We are dedicated to getting a child with a disability the right education that he or she is entitled to under the law.What STAND Does:- Increase community awareness of the issues that affect individuals with disabilities.
          – Provide access to information related to the rights of persons with disabilities, special education law, and legal and administrative procedures to secure such rights.
          – Equip trained resource members to assist individuals with disabilities and their families in the administrative procedures related to assuring a “free and appropriate public education” to individuals with disabilities.
          – Develop, coordinate and maintain a referral panel of attorneys who are concerned and interested in the rights of persons with disabilities.
          – Provide resources or referrals for selected legal cases where the principal or issue involved may have a significant impact upon the rights of individuals with disabilities.
      • WellCare
        Health insurance & HMO

        • Location: 3191 Maguire Blvd., Orlando, FL, 32803
        • Phone: 754-367-2203
        • Website http://www.wellcare.com/
        • WellCare remains focused on providing access to quality health care to some of our nation’s most vulnerable populations and on the many opportunities to provide health care coverage to the growing number of low income. At WellCare, we understand that different people have different healthcare needs, and we are committed to helping you find a health plan that works for you.

Devices for Special Needs Kids

      • Freedom Concepts Inc.
        Products for children with disabilities

        • Location: 2087 Plessis Road, Winnipeg, Mannitoba R3W 1S4, CANADA
        • Phone: 204-654-1074
        • Email: Susana@freedomconcepts.com
        • Website: http://www.freedomconcepts.com
        • Working with medical professionals and families since 1991, Freedom Concepts Inc. custom-builds each mobility device for individuals with disabilities such as Cerebral Palsy, Spina Bifida, Muscular Dystrophy, Rett Syndrome. The product line-up includes devices that compliment our goal of creating fun, therapy and most of all… freedom!
      • Sammon Preston Pediatrics
        Rehabilitation, assistive, and splinting products

      • Variety – The Children’s Charity of Orlando
        Equipment for children with special needs

        • Location: 520 N Semoran Blvd, Suite 220, Orlando, FL 32807
        • Phone: 407-422-KIDS (5437)
        • Fax: 407-382-1234
        • Email: www.varietyflorida.org
        • Website: http://www.varietyflorida.org
        • Variety the Children’s Charity Kids on the Go Program provides equipment to enable children to participate in their community. It serves children with physical disabilities, 18 years of age & under by providing wheelchairs, van lifts, house ramps, adaptive car seats & strollers, specially-equipped bicycles & tricycles, stair-lifts and other items, when this equipment cannot be obtained from any other source.

Products for People with Special Needs

      • Beyond Play Catalog
        Early Intervention Products

        • Phone: 1-877-428-1244
        • Category: Developmental Toys
      • Enabling Devices
        Toys for special children

        • Website: http://enablingdevices.com/
        • Enabling Devices, a division of Toys for Special Children, Inc., is dedicated to providing affordable learning and assistive devices for the physically challenged.
      • Juice Plus
        Food nutrition Supplement

        • Location: 516 Lake Charm Ct, Oviedo, FL 32765
        • Phone: 407-359-5014
        • Email: amsargent@cfl.rr.com
        • Website: https://www.juiceplus.com
        • We provide Health Supplements
      • Kaplan
        Concepts for Exceptional Children

      • LucasWorks
        Safe products for children with Autism

        • Phone: 302-698-5352
        • Email: lucasworks@comcast.net
        • Website: http://www.lucasworks.org
        • LucasWorks was founded in 2004 to solve some of the problems that parents and caregivers face when raising a child with autism, PDD, or other developmental disabilities. Their Independent Living products teach basic living skills, like how to dress for the temperature. They have a variety of safety products to help you keep your child safe while at home, at Grandma’s house, etc. They also have ID products that include places to list your child’s meds and conditions. In addition to providing products that help the families of children with autism and developmental disabilities, the goal at LucasWorks is to employ these students as they finish school. LucasWorks provides a training ground through the local school district for students with autism and developmental disabilities to learn job skills as they assemble and ship the products. The goal is to employ them when they finish school. The LucasWorks website hosts valuable information. In addition to offering products to help children with autism and developmental disabilities, they share their story to help others trying to plan for their child’s future. There are articles about parenting a child with autism, links to products and services for families, and a feedback page for customers to tell them what they need, or to ask a question.
      • Sammon Preston Pediatrics
        Rehabilitation, assistive, and splinting products

Search Engine

      • 211 Resource Directory
        Resources Directory

        • Phone: 211
        • Website: http://www.211.org
        • 2-1-1 Community Resource Directory Nationwide resources. Enter your zip code for the 2-1-1 service for your area.
      • KwMap
        A Keyword Map for the Whole Internet

        • Website: http://www.KwMap.net/.
        • This search engine is a great source for looking up resources by categories.

Transportation

    • Access Lynx
      Public Transportation

      • Location: Orlando, Florida
      • Phone: 407-423-8747
      • Website: http://www.golynx.com/
      • Door to door transportation for individuals with a disability that prohibits them from accessing the bus. Individuals must complete application for eligibility determination.
    • Dream Tours, Inc.
      Dedicated to providing quality based, memorable, and affordable vacations, to people with special needs

      • Location: 812 Deer Woods Road, Celebration, FL 34747
      • Phone: 321-939-2200
      • Email: ryan@dreamtoursflorida.com
      • Website: http://www.dreamtoursflorida.com
      • Supervised all-inclusive vacations for adults with developmental disabilities. Resource for families with special needs children to visit the Orlando theme parks.
    • Lynx Transportation
      Public Transportation in Orlando, FL

      • Location: 455 N. Garland Avenue • Orlando, Florida 32801
      • Phone: 407-841-LYNX
      • Website: http://www.golynx.com/
    • Suntastic Tours International
      Personal VIP and Concierge service to Central Florida

      • Location: 52 Riley Road, Ste. 188, Celebration, FL, 34747
      • Phone: 321-284-4507
      • Email: info@suntastictours.com
      • Website: http://www.suntastictours.com
      • Suntastic Tours International, Inc. is the onlyPersonal VIP Concierge Service of its kind. We provide service in Central Florida and surrounding areas to all of the theme parks and attractions. We are here to assist you and your family in every aspect of planning your trip from your arrival in Orlando to your return home. We custom design every day to your family’s specific needs and dynamics. We specialize in serving persons and families with disabilities and a broad spectrum of special needs.